Of course while we were gone we received ALL the snapchats of our perfect beags <3
Here is a little look back on what our 2017 looked like! It wasn’t the greatest start to the year between losing my Gma and then our car getting totaled in an accident but it turned around and ultimately I learned a lot about being thankful for all things, especially the little things 🙂
This is a hard question because I don’t think you can. It is unfair to put it in a box, because we don’t all fit in that box together as Crohnies. Mine is going to be different from the next person. For me I am lucky to say that Crohn’s only controls a few parts of my life, some hours of some days, some people it controls their whole life. I cant really describe it in one word or sentence.
I definitely researched a lot but I consulted with mom too. Made sure I had support system, don’t be afraid to ask for help. You’re so scared but you need to reach out, even find support groups. Ask questions even if you think they are dumb. The more you understand the more leaning how others are affected, it all helps. Being educated on all aspects. Don’t read just what wiki says look past that too.
This week is dedicated to Crohn’s & Colitis Awareness across the nation and I’m keeping it as my theme for my posts! On Monday I shared an interview with my Mom, she was diagnosed at an young age along with her twin sister and has lived with Crohn’s my entire life while raising kids, maintaining a job, and well just enjoying life. Today I want to turn to the person who supported her throughout, my Dad. I thought it would be good to see a perspective from someone who is deeply impacted by the disease as well, though a little more indirectly. (his responses are in italics below)
I asked everyone this question and I found my Dad’s answers to be the most honest. It might seem brutal but I think those words are real. I found that my mom and sister didn’t want to let Crohn’s take any more from their lives than it already has so they down played it a little maybe.
Identify the symptoms and flags. It can be an ungodly and helpless feeling seeing her wadded up in a ball and there is nothing I can do for her. I tried to let her have her space so as to not aggravate her and just let her heal. One of hardest things I’ve ever seen, completely miserable to watch. Terrible, just terrible.
Be aware, be their advocate. You can’t force them to do anything but I would check. Its making sure you’re paying attention to their signs.