This is a hard question because I don’t think you can. It is unfair to put it in a box, because we don’t all fit in that box together as Crohnies. Mine is going to be different from the next person. For me I am lucky to say that Crohn’s only controls a few parts of my life, some hours of some days, some people it controls their whole life. I cant really describe it in one word or sentence.
I definitely researched a lot but I consulted with mom too. Made sure I had support system, don’t be afraid to ask for help. You’re so scared but you need to reach out, even find support groups. Ask questions even if you think they are dumb. The more you understand the more leaning how others are affected, it all helps. Being educated on all aspects. Don’t read just what wiki says look past that too.
This week is dedicated to Crohn’s & Colitis Awareness across the nation and I’m keeping it as my theme for my posts! On Monday I shared an interview with my Mom, she was diagnosed at an young age along with her twin sister and has lived with Crohn’s my entire life while raising kids, maintaining a job, and well just enjoying life. Today I want to turn to the person who supported her throughout, my Dad. I thought it would be good to see a perspective from someone who is deeply impacted by the disease as well, though a little more indirectly. (his responses are in italics below)
I asked everyone this question and I found my Dad’s answers to be the most honest. It might seem brutal but I think those words are real. I found that my mom and sister didn’t want to let Crohn’s take any more from their lives than it already has so they down played it a little maybe.
Identify the symptoms and flags. It can be an ungodly and helpless feeling seeing her wadded up in a ball and there is nothing I can do for her. I tried to let her have her space so as to not aggravate her and just let her heal. One of hardest things I’ve ever seen, completely miserable to watch. Terrible, just terrible.
Be aware, be their advocate. You can’t force them to do anything but I would check. Its making sure you’re paying attention to their signs.
Its the shits …in every way, every aspect. Pun intended. I’ve spent too much of my life trying to hide it, letting it take my life. I made it out up on top too though.
I asked this question in each interview with my family members and it was really interesting to see how they differed! My mom didn’t want to go into much detail because she felt Crohn’s didn’t deserve the credit, you’ll see what my dad & sister said later this week.
Yes I was always scared. Who was going to take care of you, my girls? I didn’t want to be sick, I wanted to be like everyone else. I was in serious denial. I spent a lot of timing thinking I wasn’t sick. I felt like I couldn’t be sick, didn’t have time for it. But I was terrified when I was at my worst.
I’ve learned that I have Crohn’s disease. There is no denying it, changing it, it is who I am. They make these meds for a reason, to be taken. It is important to find a good doctor, you have to believe yourself, but they have to believe you too. It is important to educate yourself about the treatments & consult on those with your doctor.
Just because it is invisible doesn’t mean it isn’t real. And please don’t give me advice on how some oils, acupuncture, herbs, medicines, or other diet is going to heal me.
Hi there! Today I am linking up with Andrea for a Show & Tell sharing a few gift ideas on in the categories of want, need, wear, and read. Last year this post worked out really well for me as my parents actually gifted me a watch I listed even when I didn’t ask for it! So I thought long and hard about what I wanted to put on my list this year 😉
Even more important than the things I list below though is that today is #GivingTuesday, click here to see my post about the significance of donating and giving as I share some of the organizations that are on our list to support today!
Typically I prefer to get my books from the library because it is space and cost effective, however memoir, self help, inspirational, and such type books I like to purchase so that I may refer to them often. I purchased Sophie Hudson’s newest book, All in All journaling devotional, in October which was something very new for me but I am LOVING IT! So I’ve added a few more similar to my list.